Not everyone is given equal opportunities in life, but even when faced with the most difficult challenges, it’s not the circumstances that define us, but our outlook.
Logan was born in 2007 alongside his twin brother Austin. However, as time went by, their parents began to notice that Logan was falling behind in development in comparison to Austin. Soon after, Logan was diagnosed with Sanfilippo syndrome. As Logan’s mom, Noelle, described: “Sanfilippo syndrome is a terminal, neurodegenerative rare disease. Children lose all the skills they’ve gained such as talking, eating by mouth, walking, and much more. They suffer from seizures and movement disorders, joint pain, and have a short life. The average life expectancy is mid to late teens.” The news was devastating to the whole family.
In 2020, Noelle began sharing their life on social media, raising awareness in hopes that someday there will be a cure, and children born with Sanfilippo syndrome will have a second chance at a normal life.
