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Judy Illes, Professor, Neurology, University of British Columbia

There is no known cure for ALS, but medical tourism exploits desperation for profit

Amyotrophic lateral sclerosis (ALS) is a devastating neurological disorder of unknown cause, in which motor nerve cells of the brain and spinal cord that transmit signals to muscles progressively degenerate. This weakens limbs and affects speech, swallowing and ultimately the ability to breathe, resulting in death, typically within just a few years.

Each year in Canada, approximately two people per 100,000 are diagnosed with ALS, amounting to about 1,000 cases based on the current population. In British Columbia, where we are located, the rate is estimated at just over three per 100,000 or roughly 190 new cases per year.

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