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Kathy Boschen, Research Associate, Casual Academic, PhD Candidate, Flinders University

The NDIS promises lifelong support – but what about end-of-life support for people with disability?

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Official estimates predict that by 2032, more than one million Australians will be supported by the National Disability Insurance Scheme (NDIS).

Much of the focus on the NDIS has been with how much it will cost, how people can get on it and how they can best spend the funds allocated in their plans. But no attention has so far been placed on the end-of-life needs of this highly marginalised population. People with psychosocial disabilities (such as schizophrenia, bipolar disorder, borderline personality disorder or major depressive disorders) and life-limiting diagnoses are particularly vulnerable.

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