“I have lived knowing my daughter is going to die before me, and when you tell people what she’s been through, they can’t believe you’re standing there.”
These are the words of Bridget Harpwood, whose 12-year-old daughter Elain was born with a complex heart condition and has been supported by Tŷ Hafan children's hospice in Sully since she was a baby.
Thanks to the hospice, parents like her are able to lead life as normally as possible. But she is keen to smash stereotypes that life in a children's hospice can only ever have a sombre feel. Together with other parents, she had spoken out about what it's really like when you have a child with a life limiting condition, and how making memories and enjoying every moment is at the heart of everything. You can get more health news and other story updates straight to your inbox by subscribing to our newsletters here.
