A little girl with a rare degenerative condition wants to spend one last day with her family at Alton Towers before time runs out.
The parents of Bella-Rosa Taylor, who is blind and deaf, say she wants to 'feel the wind' on her face and spend what time she has left creating 'more precious moments', Birmingham Live reports.
The youngster, from Oscott, is one of only four others in the world known to have the incurable syndrome, which is a mutation connected with the TRAPP gene.
Dad Anthony said: "We know we haven't got her for a long time.
"But we don't know how long that period is. It could be tomorrow, could be six months, could be a year.
"It's all about making Bella as happy as we can and giving the kids something to remember her bye too."
Bella, born on Boxing Day in 2016, was transferred to Birmingham Children’s Hospital at just three-weeks-old. After a number of tests doctors confirmed she had a hole in her heart, as well as kidney failure and brain damage.
Bella's family, with the help of Make-A-Wish UK, are appealing for the public's help to grant the youngster a number of joyful moments while there's still time. The charity relies on donations to deliver life-changing wishes for critically-ill children.
Mum Toni said: "We thought Alton Towers, because of her being deaf and blind. She loves movement, loves the wind in her face. She's never been swimming.
"Whenever we get the fan out, she just loves it. At CBeebies Land she’ll be able to sit on my lap and feel the rides – feel the wind on her face.
"We've always said, as hard as it is, the good always outweighs the bad. We want to have more happy memories.
"That's what we want for our kids too. Want them to remember happy times with Bella, rather than it always being sad."
On Bella's condition, Toni added: "Bella has a syndrome without a name. It’s a mutation to do with the TRAPP gene.
"We were told that Bella was one of only five people in the world with that exact mutation. We had no information – doctors and professionals barely knew more than us. We had no idea what to expect.”
Bella requires constant care and is unable sit up by herself. Dr Larissa Kerecuk at Birmingham Children’s Hospital said: "Wishes can have a very beneficial effect on mental health. It gives the child and their family psychological resources to be able to deal with difficult times.
"I have seen the magical effect that a wish can have on the family unit and how it can bring everyone together.”
CLICK HERE, to support Make-A-Wish UK and help grant life-changing wishes for children like Bella.
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