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The Guardian - UK
The Guardian - UK
Politics
Guardian community team

Tell us your experience living with Tourette syndrome

Tourette’s campaigner John Davidson at the Baftas.
Tourette’s campaigner John Davidson at the Baftas. Photograph: Matt Baron/BEI/Shutterstock

Controversy erupted at the Baftas award ceremony after the BBC initially failed to edit out the N-word spoken involuntarily by John Davidson, who has Tourette syndrome (TS).

In a statement Davidson said he was “deeply mortified if anyone considers my involuntary tics to be intentional or to carry any meaning”. He added: “I have spent my life trying to support and empower the Tourette’s community and to teach empathy, kindness and understanding from others and I will continue to do so. I chose to leave the auditorium early into the ceremony as I was aware of the distress my tics were causing.”

We would like to hear from people who are affected by Tourette syndrome (TS), and in particular those who have vocal tics involving swearing (coprolalia).

Has the situation at the Baftas reflected your own challenges? Do you have any view on how you would like other people to respond? You can tell us about your experience below.

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