A former soldier has formed a close bond with a girl fighting a deadly brain disease - and launched a mission to try to save her life. Dad-of-two Darren Hardy, 36, was reduced to tears when he heard about schoolgirl, Aggie Candy-Waters, who was diagnosed with a deadly brain condition aged five.
Now 13-years-old, Aggie who used to run, play and sing is permanently in a wheelchair and is rapidly losing her fine motor skills - meaning she is fed, dressed and carried by her parents and is losing her ability to speak.
But, there is new hope. Doctors at the Children’s Hospital of Philadelphia have made a breakthrough. New gene therapy that slows down the disease in mice could help save Aggie and children like her - but £1 million is needed for human trials to begin.
