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Liverpool Echo
Liverpool Echo
National
Benjamin Roberts-Haslam

'Smiling' and 'happy' teen dies week before birthday

A 'smiling, happy' teen suffered up to 100 seizures before his death just a week before his birthday.

Ryan Ellis was born with brain damage before being diagnosed with a rare form of epilepsy called Lennox-Gastaut syndrome, causing the teen to suffer as many as 100 epileptic seizures a day. Often the seizures would be "big ones" which would require him to be moved and take days for him to fully recover.

The 18-year-old from Everton, who also suffered from scoliosis and was PEG fed (percutaneous endoscopic gastrostom - a type of feeding tube), was unable to talk or walk in the same way his peers could but he would find a way of communicating with his mum and aunt who were both his full-time carers.

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