A dad has spoken of his heartbreak after learning his little girl won't live past her 12th birthday. Darren Landry said his daughter was hitting all of her 'major milestones' before the family received her 'devastating diagnosis'.
The dad, 40, from Sefton, said nursery staff first noticed his daughter Isla's speech was not developing properly when she was around three-years-old. Doctors initially suspected she had Rett Syndrome, but were soon told the had a rare life-limiting disease that affects just one in 150,000 people.
Every day, the now six-year-old lives with Niemann Pick type c. This means she can no longer walk unassisted and is 'dying in front of our eyes', said dad Darren. He told The Echo that she 'fought like a warrior' since the diagnosis and that he is determined to make as many 'precious memories' as he can for his daughter.
