Little Savanah-Bleu O'Brien has had a very tough start to life. The three-year-old was born with a progressive brain disorder called leukodystrophy which stops her from talking, walking and even eating properly.
She's also almost completely blind, has frequent seizures and suffers with terrible muscle spasms which keep her up at night. Her mother Jayde Adams said she spent almost two years without sleeping and has had to give up work to look after the poorly child 24-7.
After finding a routine for Savanah which brought the family some form of normality, they are now facing another form of hardship which threatens to be just as arduous - the cost of living crisis. It was announced by regulator Ofgem on Friday that the typical household energy bill will hit £3,549 a year from October 1.
