A mum has claimed her son is being "left behind" because of his life-limiting condition.
Kara Dobbs, 29, from Birkenhead, was only 20 when she first suspected something might be wrong with her newborn son, Leo, who was suffering from bouts of vomiting. At seven months, Leo was diagnosed with Infantile Pompe disease - a condition affecting only 25-30 children in the UK - which means sugars harmfully enlarge his vital organs.
It is a progressive condition that causes muscle weakness, lack of reflexes, difficulties breathing and swallowing and an enlarged tongue, liver and heart. Despite the complications and short life expectancy that comes with having Infantile Pompe, Kara has been tirelessly trying to make every day with Leo, now eight, count and not let his condition get in the way of him "living his life".
