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Daily Record
Daily Record
National
Kaitlin Easton

Scots mum raising awareness of rare genetic condition after premature birth of daughter

A Scots mum is raising awareness of a rare genetic condition her premature daughter was diagnosed with, as well as cash for medical treatment.

Demi Carrie, 23, gave birth to Ada-Marie when she was 30-weeks on May 1, 2022, and she was rushed straight to the neonatal intensive care unit (NICU) in Victoria Hospital, Kirkcaldy.

While the first few days of her life went relatively well, little Ada-Marie was soon diagnosed with meningitis and sent for further tests when doctors became concerned about her condition.

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