Four-year-old Zunaira is watching the animated children’s series Love Monster on an overhead TV screen as she lies in a hospital bed with six electrodes stuck to her body.
Her 10-year-old brother Zain is busy on his iPad on a chair next to her in the clinical research facility at Great Ormond Street Hospital (Gosh) in central London, whose white walls have been brightened with reproductions of children’s drawings of leaves. They are here for a study trialling a new drug to treat a rare genetic kidney disorder that can be fatal.