The parents of a young girl battling a life-limiting condition have issued an urgent plea for vital home adaptations to be carried out by a local authority.
Eight-year-old Manya Rezaei has a rare genetic condition, known as nemaline myopathy, which causes muscle weakness and means she requires 24 hour ventilation and is unable to walk or talk.
The condition is so rare she is believed to be the only child with it in the North East and her parents Soodeh and Farhad have been told she may live until she is 14 years old - but there is no guarantee.
