The family of a brave nine-year-old boy battling an extremely rare condition has been left heartbroken after revealing his condition has deteriorated.
Milo Browne, from North Shields, suffers from a rare degenerative condition so unique it is known only as M3BHA and there is no diagnosis.
Children with this condition are not expected to live to two years but Milo, who was born blind, has defied all the odds leaving doctors baffled.
