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The Independent UK
The Independent UK
National
Matthew Perrone

NIH to fund unproven ALS drugs under patient-backed law

Julie Dietz

When patients with a deadly diagnosis and few treatment options have tried to get unapproved, experimental drugs, they have long faced a dilemma: Who will pay?

Responsibility for funding so-called compassionate use has always fallen to drugmakers, though many are unwilling or unable to make their drugs available for free to dying patients.

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