In May of 2020, we received the kind of phone call no parent ever wants. “It’s Duchenne,” the neurologist confirmed. In that instant, the world dropped out from underneath us.
Duchenne muscular dystrophy (DMD) is an incurable, progressive, muscle wasting disease that affects about 1:3500 live male births. It is a life-limiting genetic condition, and those affected often don’t survive to see their thirties.
