Dad-of-two Tom Baker is in almost unbearable agony every time he walks.
His ultra-rare condition, which has been diagnosed in just a few hundred people worldwide, causes painful calluses to form on the bottom of his feet when any pressure is applied.
Layers of skin blister and thicken in a very short space of time, forcing the 44-year-old to take a scalpel to them every fortnight to prevent them cracking and becoming infected.
