Like any first-time-parents, Sophie Elliott and Sam Lewis are absolutely besotted with their baby girl, Indie Peal Lewis. But their first few months as mam and dad have been far from the ordinary.
Indie was just four weeks old when she started showing symptoms of an incredibly rare disease called Niemann-Pick. Up until then, any symptoms now five-month-old Indie was experiencing were passed off as viral infections, reflux, colic and even a cows milk allergy.
The condition is life-limiting, and Sophie, 22, and Sam, 23, don't know how long they have with little Indie. Speaking on Indie's parents behalf, Sophie's sister, Stacey Elliot, said: "For any parent to be told their child is going to pass away is absolutely cruel, but also being told they don’t know when this disease is going to take over her little body is even worse. Everyday they look at her beautiful smile and they wonder will it be their last time."
