A mum has spoken about the moment her world was turned upside down, as her young son was diagnosed with an ultra rare, incurable condition. Sheryl Lawson was given the heartbreaking news that her five-year-old boy Jeffrey has Battens disease, last year.
Symptoms of the illness include blindness, loss of speech, and even child dementia. Sheryl, 35, first noticed issues with Jeffrey's speech when he was two-years-old but did not initially think that it was anything serious.
However, he started having seizures and issues with his movement and that's when Sheryl and fiancee Andy Charlesworth decided to get some more tests. The diagnosis floored her.
