The mother of a teenage girl born with the incurable ‘Butterfly Skin’ disease today opened up on a “nightmare” battle for increased nursing support.
Liz Collins’ 18-year-old daughter was diagnosed with recessive dystrophic epidermolysis bullosa (EB) shortly after birth and her fragile skin blisters inside and out at the slightest touch.
Every day, she requires fresh bandages to prevent infection – which Ms Collins describes as a “horrific” four-hour ordeal.
