Mother of boy with rare disorder known to affect only 200 people told he is ‘unlikely to survive past teens’

Frankie 'loves' being in a mainstream school - (Collect/PA Real Life)

The mother of a boy with a rare genetic disorder, known to affect around 200 people worldwide, has said doctors told her “nothing can be done” and he is “unlikely to survive past his teens”.

Amy Sheridan-Hill, 46, a former teacher living in Ware, Hertfordshire, said she was “shocked” for her son Frankie to be diagnosed with H-ABC, a rare genetic disorder which affects certain parts of the brain, in 2021, aged five.