The number of children living with life-limiting conditions is on the rise in Wales and we desperately need to ensure that we are looking after them, and their families, in the way that they deserve.
In the years between 2009 and 2019, the number of children living with a life-limiting condition rose by almost a quarter. If this rise continues, which it is likely to with advancements in medical treatment, the services that are already stretched and unable to reach every family will not be able to cope.
Children diagnosed with life-limiting conditions often have incredibly rare and complex conditions that require expert care. Some children may be among only a couple of hundred people living with the condition in the world.
