A family are making as many memories as possible with their "warrior princess" who is not likely to live past the age of 13. Her rare diagnosis means Isla, six, "won't be the same" in just a few months' time.
Her dad Darren Landry has spoken out about her condition, which is thought to be so rare that she is the only person in her home city of Liverpool who has, and has had, what is known as Niemann Pick type C. Darren said little Isla "started life like any other child" and his the usual milestone up until the age of three.
Darren, 40, previously told the LiverpoolECHO that when Isla went to nursery, staff noticed that her speech was not developing properly. At first doctors diagnosed her with Rett Syndrome.
