An Ilkeston family say they are in crisis after their seven-year-old son, who has a life-limiting brain condition, had his care reduced. Patrick Langford requires round-the-clock care due to having pontine tegmental cap dysplasia, a rare condition that means he is unlikely to live until adulthood.
However, after three of his carers stopped working - reducing his hours from 118 to 46 - mum Vicki Langford has been forced to sometimes stay awake for more than 24 hours to support him. "At the minute I've got five nights uncovered," the 33-year-old told Nottinghamshire Live.
"I've got to stay awake for over 24 hours, drive a car to take my children to school, put myself and my family at risk - and other road users. Whilst I'm expected to do a night shift, the chances of me falling asleep is putting Patrick at risk."
