The sense of helplessness that comes with a cancer diagnosis can be devastating, particularly when treatment options appear to have been exhausted. For many, hope can be found in clinical trials, yet the information on what might be available can be patchy.
So if you need to hunt down your own, where do you start?
Aud Noble, 55, from Edinburgh, has become something of an amateur sleuth when it comes to clinical trials. Her daughter Kira, 19, was diagnosed with neuroblastoma, a cancer that starts in nerve cells, in 2014.