A dad-of-two who suddenly became "tired, really horny and aggressive" was forced to have surgery after doctors found a orange-sized tumour on his brain.
Shaun Turner, 38, was given the heartbreaking news in 2014 after he experienced personality changes and lost his sense of smell and eyesight.
The tumour was found by chance after Shaun's wife booked him an eye test due to his gradual loss of sight. The test found an anomaly and led to a scan which discovered the orange-sized mass on his brain.
The dad, from East Cowes, Isle of Wight, underwent an operation to remove the tumour in October 2014. There are still traces of cancer in his brain but he is monitored on a regular basis.
"I had personality changes. I'm normally very chilled and easygoing with loads of energy," he said. "The effects of the tumour made me really tired all the time, really horny and aggressive. In all honesty when I found out it didn't feel real. My entire family and friends were all so worried about it that I didn't feel able to show any weakness or that it fazed me.
"I had a positive attitude and genuinely believed I would be alright, but I was terrified inside. I believe there are very small traces left which is what I had radiotherapy for in December 2020."
Shaun's family were devastated by the disease once again in December 2018 when they lost their mum to a glioblastoma (GBM). Jill had intense radiotherapy however the cancer was too aggressive and she died just four months later.
Shaun's brother, Daniel, 36, an electrician, from East Cowes, Isle of Wight, said: "For the disease to have struck our family twice was shocking and we have asked doctors the likelihood of passing it onto our children but they have said it is purely bad luck.
"My brother has had genetic testing and there is nothing to prove it is in your family gene - it's just awful luck.
"The treatment my mum had in such a short space of time caused side effects including extreme fatigue and you could see how it was impacting her physically. Looking back knowing what we know now, we may have chosen a different treatment pathway."
Daniel was amongst a team of nine cyclists who took on the 68-mile Isle of Wight Randonnee on Saturday, July 1 to raise money for the charity Brain Tumour Research. Dozens of cyclists completed the route around the island raising more than £10,000 for the charity.
Dr Karen Noble, director of research, policy, and innovation at Brain Tumour Research, said: "We are sorry to hear this has happened in Daniel's family, but are grateful for all his fundraising efforts.
"Brain tumours are indiscriminate; they can affect anyone at any age. To have these two diagnoses in the same family is an extremely rare occurrence, less than a one in a million chance.
"If we are to change the stark facts around survival of this disease, then we simply must invest more into discovery science - the route to a cure."