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Health

Huntington's disease support lacking in regions adding to families' 'trauma and isolation'

Disease Andrew Gee

Jessica couldn't afford $100,000 for the form of IVF that prevents children from getting the HD gene. (Supplied: Jessica)

Like everyone on her side of her family, Jessica — whose identity has been withheld to protect her privacy — has been diagnosed with Huntington's disease (HD).

Her mother, father, siblings, grandparents, uncles, and aunties all have the rare, genetic condition, which causes a breakdown of nerve cells in the brain.

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