The Centers for Disease Control and Prevention first used the term “AIDS” on Sept. 24, 1982, more than a year after the first cases appeared in medical records. Those early years of the crisis were marked by a great deal of confusion over what caused the disease, who it affected and how it spread.
But the naming itself – acquired immunodeficiency syndrome, which we now know is caused by the human immunodeficiency virus, or HIV – was a milestone. How people talked about and named the AIDS crisis shaped how it was viewed and either fostered or countered a culture of stigma.
Throughout the 1980s and 1990s, for instance, conservative Christian leaders such as Rev. Jerry Falwell described AIDS as “God’s punishment” for sexual immorality. Many AIDS activists, on the other hand, also took up the importance of naming. Instead of being called “AIDS victims,” they preferred phrases like “people with AIDS” and “people living with HIV” to affirm their status as people rather than merely patients or victims.