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Wales Online
Wales Online
Ria Tesia

Heartbroken mum thought toddler had ‘sniffles’ before dying of rare condition, creates charity book

A grieving mum whose "happy and healthy" toddler went to bed one night "with the sniffles" and suddenly died of a rare brain condition, has inspired authors around the world to create a charity anthology in her daughter’s memory.

When Tara Lyons, 37, and Daniel O’Sullivan, 34, put their 15-month-old, Sofia Lyons-O’Sullivan to bed with the sniffles in April 2020, they thought she was just teething. They didn’t imagine for one moment that this would be the last time they ever tucked her in.

But at breakfast-time the next morning, as they tried to coax her to eat some toast, the tot’s head dropped forward without warning – and her horrified parents realised she couldn’t open her eyes.

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