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Liverpool Echo
Liverpool Echo
National
Olivia Williams

Heartbroken family told girl, 6, 'won't be the same' in few months time

A dad has spoken about his daughter's rare diagnosis which means "she won't the same" in a few months time.

Darren Landry, from Netherton, said his daughter Isla "started life like any other child" and before the age of three was hitting all of her milestones. The 40-year-old previously told the ECHO that when Isla went to nursery, staff noticed that her speech was not developing properly.

Doctors initially diagnosed the schoolgirl with Rett Syndrome. However, shortly after this medics discovered Isla had a very rare condition called Niemann Pick type. It means the now six-year-old is unable to talk, walk without help, is on a waiting list for a feeding tube and also suffers from "huge seizures".

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