A family has shared their grief after losing their two-year-old son to a condition so rare, it does not have a name yet. Their son, Reuben, was born with a condition that caused brain deterioration and seizures. Despite there being only 20 recorded cases worldwide, it is the same condition that Reuben and his brothers' older sister, Olivia, died from nine years ago.
Sadly, Reuben passed away just five days before Christmas, at the age of 27 months. Now, his eight-year-old brother, Harry, has pledged to climb the three Yorkshire Peaks in Reuben’s memory - and to raise more money for the charities who have supported his family.
Speaking about her son's passing, Mum, Sophie, 30, said: "After we told Harry, he came into Reuben’s room and immediately climbed into bed with his little brother and started singing to him and stroking his head. I was there looking at my boys, my heart breaking for them. Tears were running down my face and I had to bite my tongue to stop myself from wailing and ruining that moment.
