'Beautiful' Otto George Malone sadly passed away at just four months due to complications from a largely incurable and untreatable disease.
The Newcastle couple have now opened up about their son's death as they want to ensure him memory lives on. They are now aiming to raise £10,000 to fund research into the deadly mitochondrial disease.
Ami said: "I want to keep the story of Otto alive so it can help me and Danny, it needs to be talked about, a child's death should be spoken about. I want my son to be remembered.”
