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Chronicle Live
Chronicle Live
Health
Sam Volpe

Gateshead's inspirational Jo Milne fighting to raise awareness of Usher syndrome - and help find a cure

Inspirational Gateshead campaigner Jo Milne is continuing her mission to find a cure for the condition Usher syndrome - which meant she was born profoundly deaf and has deteriorating eyesight.

In October, Jo - who founded and runs the CURE Usher charity - was in London for the launch of what the charity is calling "the story of US", which aims to raise awareness about what Usher is. Jo was born with the condition, which meant she was profoundly deaf by the time she was 18 months old. The condition also causes eyesight to deteriorate, and Jo was registered as visually impaired at 30.

However, Jo became a viral sensation in 2014 aged 39 when a video showing how she heard sound for the first time thanks to a cochlear implant moved millions - and she has worked tirelessly to raise money for research into the condition and support those like her who live with it.

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