Growing up, Tiffany Salako wasn't able to enjoy a normal childhood. She would regularly experience painful episodes, making it hard for her to breathe and walk.
As a baby, she had been diagnosed with Sickle Cell Disease (SCD), a genetic blood disorder thought to affect around 15,000 people in the UK, and which is more prevalent in people of Black heritage.
The serious and potentially life-threatening condition is the fastest growing genetic blood disorder, and can cause organ failure, strokes, loss of vision, and death.