The family of a teenager who is receiving palliative care for a rare life-limiting disease are desperate for him to visit his grandparents in Malaysia for the final time.
Sean Tye, 15, was born with Pompe disease, a condition which causes severe muscle weakness and has left him with only muscle movement in his face and thumbs. Sean is on full time ventilation so he can breathe and requires round the clock care from specialist nurses.
The Aberdeenshire teenager is one of less than 200 people in the UK to have the condition.
