The family of a 10-year-old girl with a rare genetic condition say they feel like "a number on a list" as they struggle to find her a place at a special school. Rose Wright, from Bengeo in Hertfordshire, has ataxia-telangiectasia (A-T), an inherited disorder that affects her nervous and immune systems.
Her parents, David and Jenna, say she is unable to attend mainstream school due to physical and emotional needs, but have struggled to find her a place in a SEND (special educational needs and disability) school. Rose is on roll at Morgans School in Hertford but has not attended since the end of summer term in 2021
Ms Wright wants her daughter to attend Lonsdale School, a specialist institution that can better deal with her requirements just 20 minutes away in Stevenage. But they face a waiting list up to 12-months long, by which point her parents are not sure she will benefit from an education.
