An Edinburgh mum is part of a team that has launched a new charity, Intractable, that will help families and their children meet the costs of private medicinal cannabis costs.
Karen Gray, 47, from East Craigs, has fought her son Murray, 9, to have his medicinal cannabis prescription paid for by the NHS for a number of years. As a result, her family has had to stump up over £14,000 a year in order to meet the cost of his life saving medication.
Murray, who suffers from a rare epileptic condition called ‘Doose syndrome’ that he was diagnosed with in 2017, was suffering from up to 100 seizures a day and was even confined to hospital for the best part of a year when his seizures meant that he was in a constant state of status.
