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Dublin Live
Dublin Live
National
Amy Donohoe

Dublin schoolgirl stars in new book about her rare skin disease

Debra Ireland Dublin Disease Colin Farrell Blanchardstown

A Dublin schoolgirl has become the star of her own book which will help teach her new classmates about her agonising rare skin disease.

Maria Maciukas, 7, will start her first day in her new primary school, Scoil Bhride Cailini in Blanchardstown, this Thursday. She was born with the genetic disorder epidermolysis bullosa (EB) – a condition also known as ‘Butterfly Skin’ due to the fragility of patients’ skin.

Little Maria needs new bandages to cover her blisters every day. The blisters can break out at the slightest touch.

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