A Dublin mother of a teenage girl born with the incurable "Butterfly Skin" disease, has slammed the lack of "proper supports" for her child.
Terenure native Liz Collins’ 18-year-old daughter was diagnosed with recessive dystrophic epidermolysis bullosa (EB) shortly after birth and her fragile skin blisters inside and out at the slightest touch. Every day, she requires fresh bandages to prevent infection, which Ms Collins has described as a "horrific" four-hour daily ordeal.
In an emotional address to DEBRA Ireland as part of EB Awareness Week, which starts today, Ms Collins said she has been looking for proper supports for her child for the past 18 years. She said: “No one has any idea what it is like to inflict pain on your daughter for four hours. It is just relentless.
