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Dublin Live
Dublin Live
National
Kim O'Leary

Dublin family walking 200km in aid of charities that helped daughter with rare bone condition

A Dublin mum and her family are walking 200km in aid of two charities that helped their three-year-old daughter who has a rare bone condition.

Sara Nolan and her husband Stephen are from Clontarf, and they have four children 10-year-old Jack, six-year-old Freya, and three-year-old twins Katie and Áine . Their daughter Áine has osteopetrosis, which she was diagnosed with in 2021.

Osteopetrosis, or stone bone, is characterised by overly dense bones throughout the body. Infantile osteopetrosis affects 1 in 250,000 people and the only treatment is a bone marrow transplant as long as it is caught in the early stages. Speaking to Dublin Live, Sara said that she and her husband Stephen as well as their family and friends will be walking 200km in aid of Barretstown and ChildVision.

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