
Medical paternalism, where “doctors know best” and patient views and opinions are considered to be of lower importance, is viewed as increasingly unacceptable. We are in an age where patient-centred care and shared-decision making is encouraged between doctors and patients, but is this actually happening?
Our study, led by Cambridge University and Kings’ College London, is focused on lupus, one of the most challenging autoimmune diseases to diagnose, to manage and to live with. Over 1,000 patients and doctors worldwide took part in the study. The results showed many areas where patient reports were under-valued.