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The Guardian - UK
The Guardian - UK
Politics
Daisy Lafarge

‘Despite appearances, I finally realise I am not able-bodied’: novelist Daisy Lafarge on her hypermobility disorder

Daisy Lafarge photographed with her cat Uisce at home in Glasgow by Murdo MacLeod for the Observer New Review.
Daisy Lafarge photographed with her cat Uisce at home in Glasgow by Murdo MacLeod for the Observer New Review. Photograph: Murdo MacLeod/The Observer

The post hits the floor with a padded thud I recognise as a book delivery. Good – I’m relieved to have an excuse to leave my desk. Writing isn’t going well this morning: a low, buzzy pressure behind my eyes, my head trying to snap backwards off my spine, blood pooling in my legs, everything in my body screaming that I should not be upright.

I was 25 when I first got the sense that my head might not be securely attached to my body. I got home from teaching my undergraduate students one day, sat down, turned my head to one side, and screamed: an indescribable, apoplectic pain shot through the base of my skull. It left me flat on my back, unable to move or hold my head up for four or five days. What I thought was a freak episode soon became regular, recurring three or four times a year, usually if I had been sitting for extended periods or walking with a laptop in my bag. I learned to normalise it. In October last year I travelled from Glasgow to Berlin, Madrid and London to promote my book Lovebug, an essay on infection and intimacy. When I got home it happened again, except this time, after a week or so on the floor, it did not get better.

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