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Liverpool Echo
Liverpool Echo
National
Ellen Kirwin & Milo Clay

Dad's heroic decision after son diagnosed with rare disease

A dad has given his son his 'life back' after donating a kidney to him.

Luke Amos was just 11 weeks old when he was diagnosed with a rare genetic disorder, ARPKD (Autosomal recessive polycystic kidney disease). His parents, Tori and Carl Amos, from Ellesmere Port, rushed him to hospital after he began to scream and turn blue while playing in his rocker.

He was transferred to Alder Hey hospital where they discovered his kidneys were covered in small cysts that 'resembled frog spawn'. Tori, 37, said she was 'heartbroken' by the diagnosis but was hopeful when Luke became stable and was able to live as normal life as possible.

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