A dad from Witham St Hughs has shared the emotional journey of raising his son Arthur, who is living with a rare genetic disorder, ahead of his fourth birthday. Born ten weeks premature in June 2021, Arthur has faced challenge after challenge since the moment he arrived.
Arthur was diagnosed early on with Kleefstra Syndrome, a rare genetic condition that affects multiple parts of the body, including the brain, heart, kidneys, and more. He’s also living with chronic lung disease, is partially sighted, and has significant hearing loss, reported Lincolnshire Live.
