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The Guardian - UK
The Guardian - UK
Comment
Siobhan

Dad had no idea what was going on at his DWP assessment. Still, he was declared ‘fit to work’ and our benefits stopped

Illustration by Eleanor Bannister
“It took me an hour to get Dad to the magistrates court, even though it would be an eight-minute walk for you or me.” Illustration: Eleanor Bannister/The Guardian

When I first took time out to be my dad’s carer, I thought it would be for a couple of months, a year at most. His mental health was deteriorating to the point where he couldn’t go to work – he was a cellar manager in a pub – he couldn’t do any housework, couldn’t go to the shops. He was depressed, anxious, often psychotic. He was seeing a psychiatrist, he was on medication. I thought it would be sorted out and he’d get better.

At the time, I was the person most free to help him. My dad lives alone – my mum and dad separated years ago. My siblings had husbands, wives, kids, responsibilities. I was in my mid-20s, and at first, I tried to juggle his care with flexible jobs – in a Sports Direct, a bowling alley, a school, a florist, a bar. At one point I was working three jobs. I’m not an idiot, I’m not lazy, but it was impossible. I took jobs where they want you to be “flexible”, but it doesn’t work both ways. I’d arrange all my dad’s appointments around my rota, then my boss would change the rota with 24 hours’ notice. I stopped work so I could go to my dad’s every day, get him to his appointments, get his shopping done, get his benefits sorted, make sure he had his meds, gave him emotional support and encouragement, but his health issues still snowballed.

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