A heartbroken couple was forced to travel out of state for an abortion and say they then weren't even able to hold their dead baby daughter to say goodbye to her.
Heather and Nick Maberry's daughter, Willow Rose, was diagnosed with anencephaly when Heather was 20 weeks pregnant.
The birth defect occurs when the upper parts of the neural tubes that form during pregnancy to help a baby's brain and skull develop don't close all the way, according to the Centers for Disease Control and Prevention.