A couple caring for three disabled kids haven't had a full night's sleep in six years.
Two of Amanda Crawford and Colin Craig's children have rare diseases and the third is showing symptoms, Daily Record reports.
But they only average between 20 and 28 hours sleep a week which are often naps in between caring or when Chance, six, Cj, four, and two-year-old Brooke are asleep.
Amanda said: “The sleep deprivation is a killer for us.”
Since Chance was born, they pair were awake all night with him being sick.
And once they arranged to get him treated for the rare type IX glycogen storage disease, they were up every few hours giving him specialised feeds.
He gets fed very two hours from 5 or 6am to 1am and a short delay can make him ill.
The Daily Record reports Cj has a related condition, idiopathic ketotic hypoglycemia, and his sister has similar symptoms.
All three children are now on strict eating regimes to keep them healthy.
Council chiefs have agreed to provide funding to help them for 30 minutes a day to provide early morning feeds but they have been told they need to find the specialist help themselves.
Amanda, 32, from Renfrewshire, has had to give up her career as a journalist and Colin, 30. struggles to cope with his job doing high pressure water jetting.
Amanda told the Daily Record : “We are in a black hole. We have been strung along for three years.
“We need help now. We do not know where to find someone to do the work.
"With a good night’s sleep we can do anything but I am struggling mentally.”
The couple are begging Renfrewshire Council to put proper care in place to allow them to snatch a couple of extra hours sleep.
In tears, Amanda said: “We can’t live like this. This isn’t a life.
"I am broken, absolutely broken. I don’t want to do this any more.”
Renfrewshire Council said: “We continue to engage with the family on the support they receive.”
