A Co Down mum says she felt like she was "hit by a bus" when she was given the devastating news that her "bubbly and beautiful" baby daughter only had one month left to live.
Last year Orla Haugh and her husband Andrew welcomed their daughter Ellen into the world and were looking forward to the future that the young family would have together.
Sadly, a few months later their lives had been torn apart when during a trip to the hospital after Ellen developed a cough they received the heartbreaking news that their baby girl, who they lovingly called the Queen of Co Down, had a very rare hereditary condition called Gaucher's Disease type 2 and would likely pass away within a month.
