A brave little girl has died while her family waited hopefully for a lifesaving lung transplant.
Three-year-old Porsha Williams spent 17 gruelling months living at a hospital while battling acute myeloid leukaemia.
Her grandmother Lynda Keefe said she didn't complain and "fought like you wouldn't believe."
The tot was diagnosed with the aggressive cancer in September 2021 and has spent every day since at Noah’s Ark Hospital in Cardiff.
While mum Chloe and dad Jamie have been living in the Ronald McDonald house next door, reports Wales Online.
"That girl has fought like you wouldn’t believe, she’s fought and fought like I could never fight," Lynda said.
"She smiled every day and never complained. She was diagnosed 17 months ago and [my partner] Lian and I haven’t left her side since.
"I’ve got 11 other grandchildren but she wouldn’t let me love any of them in front of her.
"She always said ‘no, you’re my nanny.’ She was a funny and extremely loved little girl."
Porsha had been in remission since her last chemotherapy treatment in November 2021.
But following a bone marrow transplant in January 2022, she was diagnosed with graft versus host disease where white blood cells in the donated bone marrow attack other cells in the body.
The condition is caused when donated cells – referred to as the graft – see the body’s cells as foreign.
Many cases of the disease can be treated successfully according to medical experts but some can cause severe and possibly fatal damage to the organs.
Porsha’s family were told late last year that the damage caused to her lungs was fatal.
"December was really difficult but we got through it and thought she was improving," Lynda said.
"She was on some new medication recommended by Great Ormond Street Hospital and her oxygen levels and sats were as good as they’ve been in a long time.
"We were heading for a lung transplant with hope but she passed away on January 21.
"It was absolutely shocking. She went from sitting up colouring to 24 hours later being gone."
Lynda said her family has been blown away by the support from family and friends and especially within their traveller community in Merthyr Tydfil, Wales.
She said: "We brought Porsha home after she died and as is tradition she’s lay in an open casket and looks so peaceful and beautiful lying there just like she’s sleeping.
"We’ve had so many gifts and good wishes. We’ve got a garden full of toys, a house full of flowers. We are so grateful.”
The family is planning “the biggest traveller funeral you’ve ever seen” on February 9, which will take place from 2pm in Galon Uchaf, Merthyr Tydfil.
Lynda added: “Porsha deserves to be heard. It’s going to be really big.
"The amount of people heartbroken over Porsha is unbelievable.
"The support we’ve had from other travelling families, we can’t thank them enough. This is going to be one massive travelling funeral."
Lynda said Porsha’s one-year-old sister Maemae was "clearly missing something" since her big sister died.
"Looking at Maemae now, you can tell she is missing something and that’s Porsha.
"We are all missing her unbelievably. We’ll never get over this – not in a million years.
"We will always hold dear the moments she gave us. I’ll always remember how much we loved her.
"The most important thing I’ve learned from her is how to really love someone.
"We want to send our thanks to every single person on the Rainbow ward at the hospital who helped Porsha over the last 17 months and everyone at the Ronald McDonald house who were equally amazing."
